Sorry it's been so long. At first, physically, I was not doing well. But slowly every day i am feeling stronger. The only negative side effect is that I am literally down to 10% of my vision. Most of the time, i need escorting around the house or neighborhood. The doctors say there is nothing wrong with my eyes, it's the lesions pressing on the part of my brain that controls sight.
We just finished my second round of Kadcyla. I will have my third round on January 11th. We expect another MRI after my fourth treatment or so.
Thank you for all of the delicious food from the meal train that Tricia posted for us. Thank you all as well for stepping up and playing with my precious boys.
Because I am not seeing very well, I can't read, color, watch TV, play games, etc. We have bought some audiobooks but other than that and listening to the TV, we are a bit stumped as to what else I may be able to do. I know there are probably a lot of things we aren't thinking about, since many people have vision problems, including blindness, so please let us know if you have any ideas, tips, etc.
If you see me out and about, just know that i can't completely see you, so please forgive the lack of eye contact and let me know who you are. Maybe we should all have a secret handshake?
Despite not being able to see so well, I could hear the laughter of my family at Christmas, which was so nice.
I will try to post again a lot sooner. Keep sending the love. If you send texts, emails or notes, I am trying to have people read them to me but I may be slow on replies. Love you all.
Happy New Year!
 |
| My family and I today after a walk around the neighborhood. (My hair! Pippi Longstocking here i come!) |
